As I’m sure some of you have figured out, today’s tube removal was NOT planned.
Braeden had an incident about a month ago where the tube pulled out and since then has been having leakage and has been complaining from time to time about pain. Not enough that didn’t seem normal so we changed tubes, did all the things we would normally do.
Yesterday he had lots of leakage so I put in a call to the GI and she had us pop in this evening to check it out. It came down to two things. A.) His site was tightening again, causing some pain and possibly B.) His tube was not long enough for the “track” (the channel to his tummy) and the tube was being inflated mid track instead of at the base.
Either way, meant some further intervention that I was uncomfortable with considering we are talking about taking this damn thing out in 1-2 months.
So, the doc says to me, “If it were me, I would just go home and say it fell out…” Mind you, he has a good portion of scar tissue around his site… this thing is not JUST coming out. I said to her, ” are you telling me it’s ok to take out?” After a little more discussion, she finally said, “lets just take it out!” So, one last restraining and pop! it’s gone!!!!!
Mr. B is not entirely happy about this but who would be… He just lost part of his little body today. Something that has been as part of him as anyone’s belly button, fingers, or any other part. He is shedding lots of tears and asking for button right now. He will heal and move on, his button will heal and we will move on, and one day my emotions will settle and I will have this as just another memory. 12/12/12 is said to be a lucky day… I would have to agree.